A little bit about me:
At 14 I was diagnosed with Panic disorder and Depressive disorder which was a bit crappy- I didn’t go out the house for two years.
After a long haul I like to say I’m 90% over that stage of my life. (touch wood)
I live with severe fatigue and chronic pain following a broken coccyx injury. Ehlers Danlos Syndrome ME/CFS (Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome) to name a few. I developed Tourette’s Syndrome later in life and it came on over night at 18. I refer to my tics as Patricia or Trish.
I have a variety of chronic illnesses but when I'm not sleeping or swimming (I’m convinced I was a mermaid in a past life), I love to travel and explore new places - having access needs has made this more difficult but I am determined for it not to stop me! I've recently bought a new wheelchair which has given me back so much independence and really improved my quality of life.
I aim to have fun despite being poorly and meet people who are understanding of my illness! Like everyone, I have bad days but I aim to focus on the good days more.
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I'm Lauren, I'm a 21 year old living in what feels like a 90 year olds body. I'm originally from Luton but live in Brighton for University. I live with a new diagnosis of what I now know to be Ehlers Danlos Syndrome. I spent many years being passed from pillar to post much like many other chronically ill people.
I have a blue badge which has improved my quality of life dramatically! But like many disabled young people, I am feeling isolated- I have plenty of friends who are amazing but our energy levels simply don’t match up- it’s hard for people to see why I sleep 28 hours a day or why I slur my words or faint if I walk. It's tough not being able to keep up with my friends whilst others my age are out clubbing till 6am. I’m sure many of you are used to the ‘oh really you can’t do that’ comments that come along with an invisible disability!
It’s okay to feel rubbish sometimes, we all do! But for me my own negativity tends to bring me down so I’m trying my best to surround myself with goodness!
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If you live in Brighton & Hove and want and want to meet some lovely people and feel apart of a community, check out my group: A Little Poorly Brighton here,