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I haven’t written for a while as I’ve been pretty busy! But also struggling with fatigue! Well what with limited energy, PIP tribunals, PA interviews & diagnosis drama, I’m not too surprised. I sometimes underestimate how much I actually have on my plate right now! I thought I’d do a quick little update on my life as constantly explaining myself can be super draining! DIAGNOSIS’ I’m just so confused! It’s such a long process! There isn’t really too much to say here other than

Following on from a series of awareness posts… I wanted to do something to help one of you right now. You don’t have to have a health condition to enter. Winner announced Sunday. Self care is always important 💜💙💜 Head over to my Instagram to enter ! #Chronicallyill #ME #giveaway #fatigue #fibro #MyalgicEncephalitis #Fibromyalgia #MECFS #CFS #AWARENESS

Following on from a series of awareness posts… I wanted to do something to help one of you right now. You don’t have to have a health condition to enter. Winner announced Sunday. Self care is always important 💜💙💜 Head over to my Instagram to enter ! #Chronicallyill #ME #giveaway #fatigue #fibro #MyalgicEncephalitis #Fibromyalgia #MECFS #CFS #AWARENESS

Myalgic Encephalomyelitis – Chronic Fatigue Syndrome. As part of a series of posts to raise awareness about chronic illnesses this month, today, I thought I’d talk about ME/CFS, Myalgic Encephalomyelitis or Chronic fatigue syndrome. Thousands of people with this condition and others alike have been isolated for years and awareness week for ME could not have come at a better time. Every cloud has its silver lining: through the grief, pain, loneliness and suffering we are exper

Myalgic Encephalomyelitis – Chronic Fatigue Syndrome. As part of a series of posts to raise awareness about chronic illnesses this month, today, I thought I’d talk about ME/CFS, Myalgic Encephalomyelitis or Chronic fatigue syndrome. Thousands of people with this condition and others alike have been isolated for years and awareness week for ME could not have come at a better time. Every cloud has its silver lining: through the grief, pain, loneliness and suffering we are exper

I’ve noticed people are very quick to focus on the negative side of disability (including myself), people refer to me as ‘the girl with tourettes’ at uni or tell me they’re proud of me, I inspire them, they don’t know how I do it- (I have to lol), whilst compliments like these are always lovely to hear, I can’t help but think I am infact just a ‘normal’ person who has additional challenges. Everyone encounters struggles in their lives- mine just happens to have happened at a

Since becoming unwell I’ve realised I have to make decisions about how I spend my time, if I want to go to a party in the evening I need to spend all day in bed resting & eating well. If I wake up in the night in pain, I need to cancel a morning appointment so I can make the afternoon one. Now, I am going to talk about spoons… no we aren’t going to eat with them, please bear with me! My Grandpa introduced me to ‘the spoon theory’ a few years back, he loves to research & is fa

Christmas 2018 was a healthy one… For me Tourettes isn’t the problem. Tourettes Syndrome makes the problem a lot more visible to others. I’ve struggled with ME/CFS- Myalgic Encephalitis or Chronic Fatigue Syndrome for a few years now. It’s an illness full of surprises. What is ME? Chronic fatigue syndrome (CFS) is a long-term illness with a wide range of symptoms. The most common symptom is extreme tiredness. (Fatigue) NHS. Who gets ME? CFS/ME can affect anyone, including chi